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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 335
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is the members stories not coming back
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Tina,
There is a thread called member's stories.
How are you?
Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Yes, Tina. How are you? Don;t seem to have heard from you for a while and we worry about you.
Love Jeanxxxxxx
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 335
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I mean the old stories we had on have they gone, i dont come on much cause it hurts to stay in the same place for long, still no answers go again next week to nag them again no daught will get no where again, i am ok apart from that just gets me down when i look and feel ninty when walking and the cold is making my wrists sore,I do miss being on here alot,
when Daniel got diagnosed last year with arthritis (gosh it has been over a year now and back then never thought it would go) any way they found a whole in his heart said it normal for a lot of people just dont get found cause they dont check everyone so he goes for that tested on monday to see if it has gone any bigger so i am a little bit worried.
How are you guys, hope you well.thanks for suport
lots love Txxx
(PS I am off from 18th do you fancy meeting up for a cuppa) is there any final dates on the trip yet?
(ps can you send me your address jean and doreen if you dont mind
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Hi Tina - sorry to hear you are still struggling so much. Are you any nearer a proper diagnosis yet? I've lost track cos can't get back to the old forum.
I wish Daniel all the best for his appointment. How has he been faring in the cold weather? Hope he's ok.
Julie
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Hi Tina, Sorry you`re still no further forward with a diagnosis - you must be just about tearing your hair out by now. I hope Daniel`s appointment goes well, you are bound to worry. Take care, Kathleen x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Dear T,
So sorry you're still suffering so much. I wonder what this is?
And we will say a big prayer for Daniel on Monday...please let us know the results etc..
You have had such a challenging year and I wish I could meet up with you for a drink, not much chance eh?!
Love,
A
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 335
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Thanks guys.
no nearer to finding what it is but i am going back again next week so hoping yet again they will do something, alls they ever do is seem to give me more and more tablets.
I am full off cold arms sore legs sore pysically tired, andy said you are just so run down and i tend to agree cause i am still struggling to work through it all but life goes on lol
thanks Tinaxx
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 854
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Dear Tina,
Have they tested you for RA yet? It is not acceptable to leave you suffering so much without at least testing to see if you also have the condition. From what you tell us, it could well be.
Hoping that you find some help soon,
Eleanor x
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 335
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from what i remember it has been that long they tested me for low throids and diabetic as i am aware nothing else but i am going to ask when i go next week have i been tested for it and if not can i cause as the weather goes worse so dose that and as i can gather thats whats happens with ra
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Dearest T,
I think you may have to insist they do alot more tests and I am afraid you may have to have a test for RA. It doesn't always show up but best to have it done....
Always thinking of you here,
A
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Hi Tina,
I agree with Amanda, my GP told me 3 times that I didn't have RA. When I eventually saw the rheumatologist he put me straight on methotrexate the day I saw him. Please keep badgering them Tina - you deserve some relief.
Julie
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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I agree as well, Tina.
Will be thinking about Dan tomorrow and really pray his appointment goes well.
Much love Jeanxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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How was appointment Tina? so sorry u suffering so much,hope son you get answers along with treatment to ease thigns for you. hugs melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 872
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Hi Tina,
Thinking of you and yours xx
Hope you get some answers and meds/ support for you, whatever is needed.
Take care, love Liz xx
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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How are you lovely Tina???
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 335
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well Daniel went monday and brilliant news, they said it has healed it self so we was very happy about that but i also have been through a lot of hospital stuff with him and problems with hospitals which most you know about so i am thinking did he ever have it but i dont care now as long as he ok.
I went to the doctors today and she said i dont know whats wrong we have done the tests and nothing has come back so she just asked me to try more antiplamitrys and codiene so i told her well i will be going private if nothing else happens cause i have had it long enough now over 6 months and every time you just say well i dont know , the siaticka sorry spelt wrong lol just more pain killers thats all that doctors seem to do dish pain killers out i have had a perscription now every two week and i know it only £7.20 but it adds up and today she gave me three so it was £7.20 3 times and it adds up over the time. I just felt like crying when came out cause i am sick of it. I work full time i have a family to look after and i in constant pay just fed up with it.( how can i look after a family and do everything when it kills me well daft of me to say it i do do it cause i no choice.
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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OH, Lovely,
This is NOT good enough, you must feel so helpless and as if they are really deaf to your pain.
Have you tried another GP in the same surgery? They are not experienced with every illness out there and hence there are times when things are overlooked. It isn't acceptable to brush you off with more pain relief and they *are* exceedingly costly.
BUT Daniel's news is just wonderful. Ecstatic to hear this. Marie was born with a heart murmur which cleared up after a few months, it is very distressing indeed.
I am keeping you in my prayers,
God Bless,
Amanda
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